I’m sitting here, trying to put into words the rollercoaster of emotions that come with being a mom to a child with special needs. Among the many challenges we face, one of the toughest parts is making medical decisions on behalf of our little ones. It’s a heart-wrenching process that leaves us feeling overwhelmed and scared, questioning every choice we make.
When our children need surgeries or procedures, it feels like the weight of the world is on our shoulders. We’re flooded with emotions—fear, uncertainty, and guilt—all while desperately wanting what’s best for our kids. We can’t help but ask ourselves a million questions: Will this really help my child? What if something goes wrong? Am I making the right decision?
Our children aren’t just patients to us; they are the light of our lives, our dreams personified. We see their smiles, hear their laughter, and hold their hands through every hurdle they face. Making medical decisions for them isn’t just a clinical process; it’s a mix of hope, fear, love, and vulnerability.
There’s no handbook that gives us all the answers. Each decision we make is personal and depends on our child’s unique circumstances. We consult with doctors, specialists, and therapists, seeking their expertise. We gather information, research tirelessly, and turn to our support systems for advice. But in the end, the responsibility falls on us as parents. We’re the ones who have to sign those consent forms, knowing our choices can change our child’s life forever.
Amidst all the uncertainty, we must also trust our instincts. As mothers, we have an intuition that goes beyond any medical knowledge. We know our children better than anyone else. We witness their triumphs and setbacks, their resilience and vulnerabilities, their joys and pains. We are their fiercest advocates, and we must trust the love and wisdom we’ve gained through our journey together.
Here are a few tips to help us navigate the challenging process of making medical decisions for our special needs children:
1. Educate yourself: Gather information, ask questions, and seek expert opinions. Understand the procedure or treatment options available and the potential risks and benefits involved.
2. Consult with professionals: Reach out to doctors, specialists, and therapists who have experience in your child’s condition. Seek their guidance and expertise to make informed decisions.
3. Trust your instincts: As mothers, we have a unique bond with our children. Listen to your gut feeling and trust your intuition. You know your child better than anyone else.
4. Seek support: Lean on your support network of family, friends, and other moms who understand your journey. Share your concerns and seek advice, but ultimately make decisions based on what you feel is best for your child.
5. Consider second opinions: If you feel unsure or have reservations, don’t hesitate to seek a second opinion. Different perspectives can provide valuable insights and options.
Trust the love you have for your child. Your decisions are driven by an immeasurable love. Remember that even if things don’t go perfectly, your intentions are rooted in their well-being.
It won’t always be easy, but with love, courage, and dedication, we’ll navigate the path ahead.
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